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Just press play.
This song is created by DJ Maple, who is in the Henry’s support network. All money generated from this song, will be donated to Minkahz NET Mission, which is guiding the Henry family through their battle, and advocating for more research and funding for this increasingly less rare cancer.
I will never forget the day Nick called me with the news about his cancer. To this day, I don’t even remember what I said—it still feels like it was just a bad dream.
The next day, I went to see him—it was his daughter’s birthday. I can still vividly remember walking into their home and feeling the weight of emotion in the room. You try to put on a smile for the four beautiful Henry kids, while at the same time trying to process what the family had just learned.
After the initial shock, Nick’s wife, Steph, did what she does best—she took charge the only way she could. She threw herself into learning everything she could about this disease. Honestly, I think Steph might know more about neuroendocrine carcinoma than most healthcare providers. I’m a physician assistant, and some of the things she talks to me about go right over my head.
Steph has been able to educate herself through various online forums and medical websites. One especially vocal advocate is Dr. Chauhan, who leads a support group and hosts bimonthly live chats to update patients and families on the latest treatments and clinical trials related to neuroendocrine carcinoma. Over 50% of his clinical practice is neuroendocrine carcinoma. At the end of this month, Nick and Steph will be flying to Miami to meet with him and get another opinion.
Some other excellent resources they’ve been following include:
- Minkahz NETs Mission
- NET Cancer Awareness
- NANETS (North American Neuroendocrine Tumor Society)
I encourage everyone to take a few minutes to educate yourself as well. While neuroendocrine carcinoma is still considered a rare cancer, its incidence has been increasing steadily over the past 10 years.
– Colin
